As we rapidly approach the arrival of baby girl, I’ve been thinking a lot about newborns. They are truly beautiful, miraculous creatures. Staring into the face of a brand new human easily evokes words such as “heavenly,” “divine,” and “perfect.” When holding the squishy, flawless body of a newborn, the words of Psalm 139 ring undeniably true:
For You created my inmost being; You knit me together in my mother’s womb. I praise You because I am fearfully and wonderfully made; Your works are wonderful, I know that full well (Psalm 139:13-14 NIV).
But what about when that precious newborn arrives in an unexpectedly broken package, or when brokenness manifests as that child grows?
What about the toddler battling cancer?
Or the newborn baby girl fighting for her life against a devastating genetic disorder?
Or the young boy locked in the world of Autism?
Or the young girl fighting severe seizures and their aftershocks?
And what about the boy who, like my precious son, finds himself battling a speech delay and the cascade of difficulties that come with interrupted communication? As a parent, it’s devastatingly difficult to see your child suffer or struggle—to see a brokenness that you’d give all the world to mend.
And as a parent to one of such children, you know the difficult, oftentimes lonely road that accompanies the care of such a unique child. Having a child with a special need—regardless of where on the severity spectrum that need falls—sets you on an entirely different path than other parents.
Instead of scheduling numerous play dates, you are scheduling doctor’s appointments and therapies and procedures.
Instead of celebrating every typical milestone, you are celebrating a single new word or a new skill such as pointing or simply living and breathing to see another day.
For many of us, the long journey begins with the arduous, confusing, and scary task of simply trying to discern what is going on with our child—what is the issue? What is the deficit? A diagnosis brings with it a co-mingled response of welcomed relief and unimaginable fear … and probably a lot of tears shed along the way.
Over the past couple of months, we have been in the thick of such things, as further testing and evaluation of our son brought to light some additional issues—like sensory processing deficits—on top of his known speech delay. Over the summer, it’s felt as though the rough waves have knocked us down, back to square one … just when we were getting a handle on speech and forming a solid plan, this new diagnosis has seemingly put us back to the starting line.
Do not pass Go. Do not collect $200.
I have been wrestling with the Lord over it all—wrestling hard. Why my son? Why this brokenness? Why the brokenness in the children of so many of my friends? The “why’s?” can threaten to consume at time, even making it sometimes difficult to see the fearfully and wonderfully amid the jagged pieces of the broken.
But can I remind you of something, fellow weary parent, in case you need to hear it today? Your child—“broken” as she may be—is absolutely, positively, and without a single doubt fearfully and wonderfully made, knit together in a unique way by the loving Hands of our Father. And my son—“broken” as he may be, was created just the same.
Truthfully, every single one of us is broken in some way—broken, because this world is a fallen shell of God’s original, glorious creation. Broken, because of the sin that entered our world and thew everything off balance.
And I’m beginning to see that perhaps these precious children of ours, though it breaks our mama hearts to see them struggle in certain ways, are giving us the gift of awareness of this brokenness … a gift that is driving us fully, wholly to the feet of Jesus.
I’m the first to admit, being aware of our need and our brokenness certainly doesn’t feel like a gift at first blush … it feels painful, and isolating. It can seem unfair—cruel even—to be required to walk a different, harder path than others.
But it is indeed a gift, an invitation into deeper fellowship with our Creator—a fellowship not afforded by a seemingly “easy” life filled up with lesser things along a well-paved path.
Your child and mine is a blessing, not just because we love them with every cell and breath in our bodies, but because God is using their precious lives and struggles to lead us into deeper things and impact the lives of others for good. And I firmly believe that God has plans as unique and influential as the unique needs of our children.
This throbbing, heartsick world doesn’t need to see perfect—it needs to see God’s perfect redemption in the midst of brokenness, a brokenness in which we are all participants in some form or fashion.
Only God knows the impact and influence you and your child will have on this world, as you walk your path in total reliance on Him!
So from one tired mama to another, I hope this truth encourages you day. You are not alone. I am not alone. I know how hard some days are. I know there are waves of bitterness and sadness that threaten to sweep right over you.
At times, I don’t know how you’re going to do it, mama, and I don’t know how I’m going to do it … but what I do know is that we will do it—because we have the arms of the Father to guide and carry us through.
We are safe and secure and victorious in Him. So lift up your beautiful, tear-stained face and know that there is grace for today. And that is all we need.
He will never fail to give us our daily bread. We need only run to Him, ask, and be filled.
Fear not, for I have redeemed you; I have summoned you by name; you are mine. When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the Lord, your God, the Holy One of Israel, your Savior.
Isaiah 43:1-3 NIV